Monday, November 1, 2021

Today is Not Forever

 I am being tested by this pandemic. Still. 20 months on. The vaccine for kids ages 5-11 is literally days away from rollout, but my daughter's school has a sizeable covid-19 outbreak. Boom, email went out Sunday night declaring remote school for the affected grade. Trick-or-treat time for me was spent obsessing over what to do.

I just... Can't keep doing this! What am I supposed to do? There is no help to call on. The "rest" of the culture seems to have moved on and I am expected in person at work. She is not very old, obviously, being ineligible for the current vaccine. I am exhausted from the mental calculus of what is acceptable and least objectionable on multiple fronts. I am burned out from living one day at a time for years now. Years of not being able to look forward to a happy future, a good future, will drag you down.

I miss the days of thinking it through with my partner.

I miss the days of passing the baton back and forth to make it work.

I miss the relief of conversation and shared looks. This is nuts but we will get through it.

This week will be hard, but it will pass. If none of us test positive, it will be but an inconvenience. The way this life goes, next week I won't even remember how stressed I was today in the face of the next challenge.

Today is not forever. That is what I need to remember in these moments of desperation.

Today is NOT forever.

Wednesday, October 13, 2021

Happy Like That

This past Friday was a gorgeous October day. Everyone was excited to get through classes because fall break lay ahead and the campus emptied quickly in the early afternoon. My office was summer-warm and bright as I graded quizzes in the silence, biding my time before an outdoor meet-up with an acquaintance. We had a nice talk over coffee that stretched over an hour or more. Eventually, I felt the pull of home and my thoughts drifted to worrying about who needed me there and whether I had selfishly stayed in my conversation too long.

The drive home was truly spectacular, the stuff New England is famous for – the sinking sun set off the red-orange-yellow leaves against a perfectly clear sky. In such beauty, it should have been a peaceful drive after a productive and good day. Instead, I felt a nagging despair. It worried me in its bleakness.

 It was more than being sad that Chris was gone, though that is part of it. I did wish I was going home to a long weekend of family fun as it seemed “everyone” else was doing. I longed for lighthearted banter amongst the four of us and later conversation just the two of us. My thought process cycled through remembering what I used to have and what I would face when I got home. A mess. A kitchen I would clean up alone. Paperwork and junk mail piling up. Going to bed in silence.

The long weekend hopeless feeling was like staring into a dark abyss and seeing no bottom, no way out, no path forward.

I will never be happy like I used to be. I will never be happy like that again.

Things went from bad to worse. I woke up Saturday morning in a fog, nearly paralyzed with apathy. Minutes and hours passed, but I accomplished very little as I plodded through mundane chores. Then, I turned that lethargy on myself in a barrage of negative thoughts and self-loathing. Later in the day, the tears started and wouldn’t stop. I was in a dark place, and a very snotty and swollen-faced one at that. Talk about a mess…

I will never be happy again.

As I settled down for sleep later, the aggravating cause of my despair became clear. My eyes and nose were not just irritated and running from crying; some nasty bug was hitting me hard. Feeling physically bad had triggered emotional distress before I even realized I was sick. The moment of relieved recognition that there was a reason for feeling so terrible quickly gave way to a different awful thought: I have a virus.

Oh no, what if it is that virus???

A specific worry gave my brain something to do besides despair. Well past midnight, I researched options and made my plan from my bed. I ordered a package of rapid home covid tests for pickup at my pharmacy in the morning. I could use curbside pickup and answer the question about covid with minimal exposure to other people. I would worry about my unvaccinated child once I found out, and I would figure out how to manage two weeks of isolation if needed.

It wasn’t needed. I had an old-fashioned cold, 2019 style. I’ve never been so happy to have a bad cold!

Did you catch that? I felt happy.

I laughed a little at myself. Obviously, I feel happy at times. It’s impossible to be unhappy when a 60-pound coonhound is trying to climb into your lap and wash your face while frantically wagging her tail. It’s impossible to be unhappy when your ten-year-old makes you picture after picture declaring you to be the Best Mom Ever. It’s impossible to be unhappy when your teen is making leaps forward intellectually, socially, and emotionally.  I do indeed have some happiness in every day. Sometimes I am even overtly happy.

Still, I had not been completely wrong. Chris is gone and he cannot come back, so I will not be happy like that again. The feeling I had when we were together cannot be replicated. It was special, and it is over. It turns my insides quivery with panic again to write that truth and lean into it.

There is peace to be found in the other truth, though. I can be happy again.

It just won’t ever be happy like that again.

 

Sunday, October 3, 2021

Orders of Magnitude

 

Tomorrow marks one thousand days since Chris died.

Something about that feels momentous. Quadruple digits, if that’s even a thing people say.

It’s been too long. Too much has happened that he has not seen, heard, or experienced in any way. I don’t look for his car to be in the driveway anymore as I return from work. I have lost the inclination to message him. I do not expect him to be at the dinner table nor to help me or the kids in any practical way.

It is not a month mark, nor the date of another year passing by.

Oh yes, this is yet a different time when I compare to earlier experiences. It is tempting to fit the data to a mathematical model - one thousand days is a milestone marking a length of time described by an entirely new order of magnitude.

Zeroth Order, 100 = 1

The first day is a land of its own, the true epicenter from which all else will eventually ripple outward. Day one is such a shock you don’t quite know what happened. He was alive last night and now he is not. His things were packed up from the hospice house and are in a bag on your bedroom floor. It makes no sense. You make calls, take calls, write a list of calls to eventually place. You go to bed alone and it doesn’t feel quite right, but it definitely doesn’t seem real or permanent.

So the zeroth order plays out incrementally, day by near-endless day. Guests. Calls. Plans. Food. Flowers. People look to you and you must make decisions, immediately. You are propelled with the urge to honor him.

As the order comes to a close, you have little idea about what is in store, though you begin to stare out the window in confusion, take a few walks alone and just barely start to comprehend what “died” means.


First Order, 101 = 10

The days are counted in double digits. The service is over. Your home is cleared of medical equipment, prescriptions, papers are filed away.

People go home and back to their lives, but you do not get yours back. He does not come home. The tears that didn’t really come cannot be stopped. The pain is unbelievable.

Days tick on through double digits and you try to keep going, but you don’t know how. You are a stranger in your own home, an alien in the shell of your old life.

The first order is nearly indescribable in its horror.


Second Order, 102 = 100 

In days counted by triple digits, he’s been gone a little while, but it is still so fresh. You have survived a few firsts without him, but now you slog through that first year. It is very, very hard.

The triple digit days feature one season changing into the next, holiday following holiday, one year turning into two. The kids grow and need new shoes, new clothes, then they go to new schools. They are smart and funny, thriving even, but they miss him. There is not enough of you to go around for hugs, games of catch, homework help, and cheering section. Even if you could do it all, they need him anyway. All of you begin to know it in your bones that he is not coming back.

You begin to manage.

In the waning days of this order, people don’t understand. They are surprised by your sadness. They think you should be over it or assume you are back to normal, not comprehending that there was no normal left to return to. You are a different person with a different life, but never asked for that.


Third Order, 103 = 1000

You make all the decisions alone, and while it is good to feel more comfortable with that, it lacks joy. You see that life stretches ahead and it would be a shame to waste it only looking back. The real work is making something of what is left because he is not coming back. He is simply not coming back.

This order is long, 1000-9999 days. It will encompass more than two decades. You could easily die in this order of magnitude. Or, you might be in your late sixties as it nears the next order.

I worry about this order. If I do that hard work and build a new life for myself, will it ever be as good? And if it were, would I lose him completely?

At the end of this order of magnitude, will I still be able to hear his voice in my head? Will I remember our life together? Will I feel connected to him?

It seems the task of the days ahead is to let go a bit to be able to live more fully. I really don’t want to.


In the end…

Perhaps the mathematical model doesn’t fit. It was a decent experiment, but the R2 value was poor. In other words, day 1000 does not have to be a milestone marking an unwelcome phase. The experience of loss is not linear, nor logarithmic. I can look all I want for patterns, analogies, and sense, but the truth is that the thousandth day is just one more day in a long line of days without Chris. My feelings will be up and down, here and there and back again.

I miss him, and that’s okay.

I am trying hard to do new things and meet new people even while I look back longingly.

I can call up his voice in my head and feel his support even as I forge my singular path onward.

I survived 999 days before today. I will do it again today, and then I will wake up and do it again tomorrow.

 

 

 

 

Saturday, August 7, 2021

Anniversary Reflections: The Two Sentences Left Out

 July 31, 2021 was a Saturday, just like it was in 2004. Alone, I marked 17 years since I was married. It was a hard day trying to act normal while feeling hurt-angry, like a wounded animal. Although I do not believe that Chris can hear my thoughts or read my words, it occasionally helps to address him directly. Sometimes I simply plead for him to come back or to help me. Other times I have more to say or feel he deserves better from me, like that milestone day which has taken some time to process.

…

If I were a better person, maybe today would have been one of gratitude for the love we shared, for re-reading our vows and looking at pictures with thanks running through my head. I’m not, so I didn’t do those things…

The pictures hurt too much to look at. In fact, I removed our wedding picture from the mantle long ago because it became confusing to see our young, happy faces in the photo while the me in the mirror ages alone, muddles through alone. It was not helpful to my daily life without you to see us smiling from atop the fireplace, so I replaced it with a family picture.

Though I do not have them memorized, I don’t need to read the words we said during our wedding because the essence of them is indelibly imprinted on my mind. We both put our unique spin on the traditional words, and I know we both meant those promises. We lived them fully and deeply, and I am proud of us every day.

Today I couldn’t bring myself to conjure those memories. Instead, I was focused on the two sentences that were left out from the vows. The sentences that we didn’t know on our wedding day, that were handed down soon after with a terrible cruelty.

Yours, of course, was the death sentence. Nobody could see it on our wedding day, but the tumor was probably already there extending its tendrils through your brilliant brain, penning the prologue to your untimely demise. It was later revealed that you would be required to loosen your grip on everything you loved, including me, and die before you were finished.

For some reason that defies logic, or more accurately for no reason at all, I got life. There was no way to know it back then, but mine was a life sentence of living without you.

These sentences were not about delivering justice; rather biology and neuroscience blindly dealt them to us - death for you and life for me (for now).

…

I am not serving out my life sentence gracefully, Chris. I miss you with a ferocity that alarms me. The bottomless pit of sadness scares me more. Quite simply, I struggle. I wish you could help me with this as inane as that sounds.

Often, I wonder what I could have done differently and better throughout our marriage. I go down the rabbit hole of wondering if I was actually good enough for you and whether most people think the better person died. I know that I should have worried less and had more fun in too many moments. As you faced down your death sentence, I should have been less afraid to cross a line and instead asked more questions about what you were feeling, to give you more chances to talk. I am not sure if I “should” have sought your counsel about my life sentence, but I wish I had not avoided discussing it with you. We did talk some, but I held back because I was worried about hurting you with my worries about my future life, which you did not have.

…

As guests have once again come to our house after so many months of isolation, I recently landed in proximity to the marriages of others and glimpsed the periphery of their private worlds. I was reminded how a marriage gives an individual support, lends counsel, provides a respite. A few times this called some of our own magic to mind, but the relief of that ephemeral sense was immediately followed by the punch that the magic is just a memory now. Similarly, I allowed myself to wear my rings for a few hours today. They slid on perfectly and looked simple and beautiful, as they always did. I felt both immensely relieved and like an incredible fraud, so I removed them before anyone else noticed.

You were my counsel, Chris. I always looked to you, relied on you, and you never once disappointed me.

You were my delight. I laughed freely when you were animated. I was proud of your accomplishments and more so of the way you treated people and moved in the world.

You were my comfort. In you, I found true respite - I could draw a deep breath and let it all the way out. When we were together, everything felt okay even when it most certainly was not.

You were my love.

You are not here anymore.

…

It feels like someone dropped a neat spool of thread the day you died and it has been haphazardly rolling away ever since. Now there is so much thread strewn on the floor, bunched up and tangled, that it would be impossible to straighten the length out and wind it neatly to get back that perfect spool of life with you.

Similarly, I have thought about what is left of you, tucked away in my dresser. My brain understands that I could never reconstitute you by adding water to the small box containing your ash and bone bits.

The futility of that imagery forces me to see that it’s impossible to go back.

My heart desperately still wants to.

…

This is my life sentence: I missed you terribly yesterday, I woke up today aching from missing you, and I will miss you just as much tomorrow.

It hurts so much because we loved each other so completely. I think you knew that I loved you then, and I wish you could know that I love you now and will love you until my own time comes. Despite my pain, this is the greatest privilege of my life and I want you to know that.

You served your sentence magnificently, Chris. I will forever be in awe of your bravery, gentleness, and your focus on love as you moved toward the moment of your death.

Thank you for everything.

I love you.

 

Friday, July 23, 2021

Constant Juggling and Missing Him

An ocean churns in my mind, every single day. I come here to document it when I can, because it helps. It is sometimes a good thing when I don't write because I'm in a good place, but sometimes I'm in a bad place and avoid doing helpful things... Time to jot a few things down.

...

 I'm tired tonight. I feel one hundred years old. I wake most mornings thinking of Chris and pondering this less-than life, wondering what the hell happened and what it all means. I struggle with this late pandemic existence, trying to forge meaning or at least beat back apathy when there are still so many limitations and necessary precautions to take.

I miss him. 

How many ways can I say that?

How long will that be the undercurrent of my consciousness? 

What will it mean when I am not crying that I miss him with every cell of my being? Will that ever happen, anyway?

...

I messed up tonight. Nothing major. It just broke my spirit a little. I had shuttled kids around to different locations and was finally relaxing at a game, feeling a bit smug because from my chair I had ordered Thai takeout from a new-to-us place on the route home. As the game dragged on, I realized that I should check the restaurant's hours. Shoot. It was 8:15, top of the 6th with home team still needing to bat, and this place closed at 8:30. Shoot shoot shoot.

I decided to leave the game to pick up the food and come back for the child. I hoped I could make it back for the end of the game, but still I messaged the coach regarding my whereabouts, feeling like an idiot. Of course, the game was called for darkness as I was several minutes away. In the end kiddo only waited a few minutes and survived just fine. The food was not wasted. It was okay. But, I HATE this. I absolutely HATE this life of constant juggling, needing help, being out of control, feeling like a loser. 

...

The worst is feeling guilty for hating this. Chris would be here if he had any choice in the matter. Why can't I have a better attitude? 

It is time to go to bed. He always advised me to do so when I was in such moods. Everything is worse when you're tired. My husband was always wise and full of compassion for me. I will try to channel it now to show myself.

Friday, June 4, 2021

Replace in Ten Years

 

When Chris and I were house hunting in our happy year of 2007, we chose an area that would split the difference between our two work locations. We looked at a handful of properties in this unfamiliar region, but not one of those houses was quite right until the last, of course. When we toured the house that is now our home, we saw that the kitchen wasn’t ideal in its style and  having only one drawer, and that storage space was lacking in the house in general. Still, the house had no red flags like the others we had seen, and it checked every one of our non-negotiable boxes. We exchanged a lot of looks on that tour telegraphing our mutual interest.

We went straight from the showing to grab pizza, just the two of us, and talked it over. Though excited, I had general misgivings over such a large decision. Chris was sure we were ready and, as usual, I trusted his judgment completely. We took the leap and made an offer. There was a little negotiation that Saturday afternoon and somewhere in the middle of that, a few questions were answered between the real estate agents. The homeowners wanted us to know that they found the attic quite useful for storage if we hadn’t checked it out (we had not). During the inspection process, Chris explored the attic and reported that it would indeed assuage the storage deficiencies in the main living areas of the house. The attic became his domain from that day on.  

Oh, Chris was a natural organizer. He measured the trapdoor and the width of the ladder steps, then purchased a dozen or more sturdy plastic storage boxes that could be boosted up and stowed in the attic. We used those boxes first to move, then to store holiday decorations and off-season clothes, and later baby equipment and clothes that we might use later. Every box was neatly labeled in his handwriting and stored tidily in the attic. My role was supportive. I would pack some of the boxes, bring them to the ladder steps, and hoist them up to Chris who would busily tuck them away according to his system. When holidays rolled around, he would climb the ladder and find the relevant boxes to hand down to me. We were a good team…

As we headed into what we knew would be the last Christmas holiday season for Chris, many things quickly changed and became painfully different. He could not climb the ladder to root out the boxes of decorations. As I did that fall with so many things that had typically fallen under his domain or ours, I tackled the task alone, as robotically and quickly as possible. The less time I spent doing it, the less time I would be thinking about how horrifying it was that he could not do it himself, and how sickening it was to know that he would not be here at this time next year.

After Chris died, I dreaded going into the attic. Eventually I would have to do it and I did, just like everything else in the after. On those occasions, I would climb the steps, flip the light on, and stare at our old life all boxed up. The still, stale air of the attic would instantly feel suffocating as my eyes would settle on one label after another, his handwriting as familiar as my own. I would have to remember to breathe as I looked around at the artifacts of our shared, now past life. Vivid memories relentlessly rushed over me and clashed with the harsh reality that he is dead. There was no sense to be made in the attic.

How can someone’s belongings, even someone’s simply written sticky notes, still be here while he is not?

What. The. Hell. Happened.

Time has passed and, just like many other things, it has become easier to go into the attic. Not easy. But noticeably easier.

Many months ago now, we heard an intermittent electronic beeping from the attic. I knew exactly what it was - the smoke alarm battery was dying and the unit needed to be replaced. I knew this because as one climbs the ladder and enters the attic, you directly face an overhead beam to which the alarm is affixed. Chris being Chris, he had also typed and mounted an accompanying reminder that read, “Replace by April 2021.” The alarm was expected to last ten years. It was just a few months shy of that.

Every time I went into the attic, I read the instructions about the alarm replacement. Those simple words always gave me pause. What was Chris thinking when he made that note? It must have been the spring of 2011, a few years into his brain tumor experience for which he had accepted his prognosis of 10-20 years. As he read about the ten-year battery expectancy, did he do the comparison math? As he drilled the holes for the mounting bracket, did he wonder if he would still be alive when the new alarm expired? I know he was optimistic and hoped to be on the 20-year side of the prognosis, but how often did he worry or even assume he’d be closer to the 10-year side of things? Did he have a premonition that he would not be the one to make the next replacement and that note was meant for me, to help me take care of the family in the after?

There is absolutely no way Chris did not contemplate whether he’d be alive in ten years as he taped his note next to the new alarm. He told me once during the good years of tumor inactivity that he thought about dying every single day, how it would play out and when. On the day he typed that replacement reminder in the spring of 2011, our second baby had only been a few weeks old. The choice to have a second child while also having a terminal brain tumor had been weighty, truly monumental for him. Would he live long enough for this new child to know him, to form lasting memories of him? Our newborn would be ten when the alarm replacement date rolled around. Chris must have wondered, Will I be here in April, 2021?

Funny how time marches on, whether we humans are here or not. Chris was on the shorter end of the prognosis, dying eleven years after his diagnosis. The smoke alarm he put up in 2011 lasted longer than he did…

Though I did purchase a new detector in a timely manner, I dragged my feet about installing it.  The new alarm sat on the kitchen counter for a long time. I simply did not want to face the attic for this task. I didn’t want to take down the note Chris left, and I didn’t want to throw it away once I did. Most of all, I didn’t want to think about the pain Chris must have felt facing his own mortality on the day he replaced the last detector and on so many, many days between his diagnosis and death.

Eventually I did fetch the required tools and climbed the ladder to the attic, new alarm in hand. I took a minute to think about Chris before starting. In my head, I talked to him a bit as I often do. There were some tears as I told him how much I miss him, how much I love him. I apologized for not asking him more questions about what he grappled with, for sometimes not being receptive to his need to talk about his inevitable disease progression before it happened because of my fear of losing him. But mostly I thanked him for being such a good partner, for taking excellent care of us, for leading with kindness and gentleness in all situations, for being so incredibly brave, and for agreeing to add our second child to our family when he knew he would not be here to see her to adulthood.    

Then, I tackled the job. I removed the old alarm and saw that the mounting bracket would not work for the new one, so I unscrewed that as well. I’ve learned to enjoy using power tools, and took satisfaction in drilling two new holes and screwing in the new bracket. Once the alarm was installed, I knew what the last step was. Using permanent marker, I wrote on the alarm cover, “Replace Fall 2030.”

As I wrote the year 2030, that year felt impossibly distant. I did the easy math; I would be turning 53 years old in the fall of 2030. My mind raced ahead with the calculations and I realized that the kids will both be launched into adulthood by that time and will not likely be living in the house year-round. I wondered if I would be living in this house in that year, and if I would still have the same job, and if my hair would be white. Then, my thoughts turned more serious. Will my parents still be alive? I shuddered with the pain of losing them someday… Will I still be alone, unpartnered? And finally, of course…

Will I still be alive in ten years?

I blanched at these thoughts. I do not feel strong enough to bear another major loss. And, much as I sometimes do not want to keep on going, I honestly do not want to die any time soon. What would the kids do if they did not have a parent for most of their lives?

I don’t know the answers or solutions to any of these musings. The only certainty is that we all must die someday, not one of us can know the day or the hour…

With no other resolution to be found, I leaned back to inspect my work. The detector was firmly attached. My instructions, though not as neat as the typed note Chris had left, would let the future homeowner, whomever that may be, know when to replace the detector to keep the residents safe.

 

 

Tuesday, May 25, 2021

A Dream

 

Those moments when sleep is giving way to wakefulness can be strange. As the dream world starts to mix with the conscious world, bizarre and vivid scenes occupy the mind in a way that deep sleep prohibits or at least prevents the brain from remembering later in an awake state. That in-between sleep time gives a tiny window into the inner workings of the mind and it gives images that stick, for better or worse.

I do not often remember dreaming of Chris. I wonder if that means I do not often dream of him, or if I simply am not in the right stage of sleep to form memories of the dreams. It doesn’t matter. He is not here to know one way or another, and I can’t control it, anyway. Still, I feel a bit uncomfortable that Chris is not there even in my dreams.

One recent morning, though, I had the rare experience of a dream of him that I remembered with clarity. Just as I was becoming aware of my bedroom lightening around me and the birds beginning their early chattering, my awareness stayed engaged with the last dream of the night. Only a snippet of the dream remained in my conscious mind, but the fragment stayed with me for days. Though it was crystal clear, it will be impossible to adequately describe because there were no words and no real events - it was just the strong sense of being with Chris, simply together as we always used to be, punctuated by his unique human sound of clearing his throat. He jokingly used to call this sound “the animal” since he was plagued by allergies and often needed to clear congestion.

That’s it. A nebulous sense of being together and the infamous sound of the animal.

Funny how what amounts to a minute at most of a dream could take up hours of time in the next several days. My conscious mind turned that experience over and over, examining and questioning it from different angles. As usual, those thoughts elicited many different feelings.

First, relief. I did not make up how it felt to be with Chris! He loved me and I loved him, and we did indeed have that rich life together.

Second, sadness. I would like to go back to sleep and return to that moment of his presence. I desperately want to feel his love again, but there is no going back.

Third, anger. This is all I get? How is this enough? I guess I am supposed to be satisfied with the crumbs of a dream including the sound of my husband’s throat-clearing when most people I know get to live with their spouse who is living, breathing, talking, comforting and on and on.

Fourth, the relentless questions without satisfying answers.

Why didn’t he say anything? What am I doing something wrong that I don’t dream of him more often? Is this what you’d call a sign from him? What does it all mean?

It’s all rather exhausting, this constant ruminating, analyzing, over-thinking…

Perhaps the most important, constructive thing to do is to look to the initial reaction of my less complicated sleeping self. Yes, my semi-conscious mind experienced that moment in the best possible way, for when I felt the dream presence of Chris and heard his animal, I simply smiled.